As organizations that work closely with the PI community, IDF and CIS want to educate the public about PI during Awareness Month and World PI Week. Although some types present at birth or in early childhood, the disorders can affect anyone, regardless of age or gender. They are caused by hereditary or genetic defects and are not contagious.

Theme of World PI Week Focuses on Access to Ig Therapy Leading up to and throughout World PI Week, IDF and CIS will lead the PI community in raising awareness and improving access to lifesaving immunoglobulin replacement (Ig) therapy for people with these rare, chronic conditions. Ig replacement therapy, which is derived from human plasma, provides antibodies to protect against a broad range of infections, and it is life sustaining and lifelong for many with PI. Such treatments exist for people with PI, but access to them can vary significantly across continents and countries of a same region. The World PI Week aims to help drive change and equal access to quality treatment for all patients.

CIS Annual Meeting Kicked off Awareness Month During the CIS Annual Meeting, held March 23-26, 2017 in Seattle, members of CIS presented new research findings and discussed treatments for PI with more than 600 meeting attendees. Serving as a kick-off for Awareness Month and World PI Week, IDF staff members also participated and shared the Foundation's resources for the PI community. The organizations will also mail IDF educational materials to all CIS members.

"The Clinical Immunology Society promotes excellence in the care of patients with immunologic/inflammatory disorders, including primary immunodeficiency diseases. It is essential that patients receive proper treatment under the care of a specialist," Roshini Sarah Abraham, PhD, CIS President. "We are proud to partner with IDF during Awareness Month and World PI Week to help increase awareness of these complex diseases and to ensure access to lifesaving treatments."

With early diagnosis and proper medical care, many people with PI can live long, healthy lives. For more information, visit http://www.primaryimmune.org or call 800-296-4433.

World PI Week: April 22-29 IDF and CIS are joining organizations across the globe to promote awareness of primary immunodeficiency diseases during World PI Week, April 22-29. IDF participates in international initiatives with the objective to Test, Diagnose and Treat! For more information about World PI Week, visit http://www.worldpiweek.org.

About the Immune Deficiency Foundation The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases (PI) through advocacy, education and research. IDF provides accurate and timely information for individuals and families living with PI and offers valuable resources. To learn more about IDF, visit http://www.primaryimmune.org.

About the Clinical Immunology Society The Clinical Immunology Society (CIS), established in 1986, is devoted to fostering developments in the science and practice of clinical immunology. CIS works to facilitate education, translational research and novel approaches to therapy in clinical immunology to promote excellence in the care of patients with immunologic/inflammatory disorders. To learn more about CIS, visit http://www.clinimmsoc.org.

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